{"id":14989,"date":"2022-11-18T13:52:45","date_gmt":"2022-11-18T11:52:45","guid":{"rendered":"https:\/\/odrudej.pl\/?p=14989"},"modified":"2022-11-18T13:52:45","modified_gmt":"2022-11-18T11:52:45","slug":"niech-zdarzy-sie-cud","status":"publish","type":"post","link":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/2022\/11\/18\/niech-zdarzy-sie-cud\/","title":{"rendered":"Niech zdarzy si\u0119 CUD!"},"content":{"rendered":"\n[et_pb_section fb_built=&quot;1&quot; _builder_version=&quot;4.19.0&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][\/et_pb_section][et_pb_section fb_built=&quot;1&quot; specialty=&quot;on&quot; padding_top_1=&quot;0px&quot; padding_top_2=&quot;0px&quot; padding_top_bottom_link_1=&quot;false&quot; padding_top_bottom_link_2=&quot;false&quot; padding_left_right_link_1=&quot;false&quot; padding_left_right_link_2=&quot;false&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;1_2&quot; _builder_version=&quot;4.16&quot; custom_padding=&quot;|||&quot; global_colors_info=&quot;{}&quot; custom_padding__hover=&quot;|||&quot;][et_pb_post_title meta=&quot;off&quot; featured_image=&quot;off&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; title_font=&quot;Open Sans|700|||||||&quot; title_font_size=&quot;41px&quot; title_font_size_tablet=&quot;38px&quot; title_font_size_phone=&quot;36px&quot; title_font_size_last_edited=&quot;on|tablet&quot; global_colors_info=&quot;{}&quot;][\/et_pb_post_title][et_pb_blurb title=&quot;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9hdXRob3IiLCJzZXR0aW5ncyI6eyJiZWZvcmUiOiJUZWtzdCAiLCJhZnRlciI6IiIsIm5hbWVfZm9ybWF0IjoiZGlzcGxheV9uYW1lIiwibGluayI6Im9uIiwibGlua19kZXN0aW5hdGlvbiI6ImF1dGhvcl9hcmNoaXZlIn19@&quot; image=&quot;http:\/\/vaxhoib.cluster100.hosting.ovh.net\/wp-content\/uploads\/2020\/05\/odrudej-ja.jpg&quot; alt=&quot;Aneta Boritzka&quot; icon_placement=&quot;left&quot; image_icon_width=&quot;48px&quot; content_max_width=&quot;1100px&quot; _builder_version=&quot;4.16&quot; _dynamic_attributes=&quot;title,content&quot; header_font=&quot;Cardo|700|||||||&quot; body_font=&quot;||||||||&quot; body_line_height=&quot;1em&quot; custom_margin=&quot;9px||||false|false&quot; border_radii_image=&quot;on|70px|70px|70px|70px&quot; image_max_width=&quot;48px&quot; global_colors_info=&quot;{}&quot;]@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9kYXRlIiwic2V0dGluZ3MiOnsiYmVmb3JlIjoiIiwiYWZ0ZXIiOiIiLCJkYXRlX2Zvcm1hdCI6ImRlZmF1bHQiLCJjdXN0b21fZGF0ZV9mb3JtYXQiOiIifX0=@[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&quot;1_2&quot; specialty_columns=&quot;2&quot; _builder_version=&quot;4.16&quot; custom_padding=&quot;|||&quot; global_colors_info=&quot;{}&quot; custom_padding__hover=&quot;|||&quot;][\/et_pb_column][\/et_pb_section][et_pb_section fb_built=&quot;1&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; custom_margin=&quot;-100px||0px||false|false&quot; global_colors_info=&quot;{}&quot; custom_padding__hover_enabled=&quot;on|desktop&quot;][et_pb_row use_custom_gutter=&quot;on&quot; make_equal=&quot;on&quot; module_id=&quot;nieszkodzic&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; custom_margin=&quot;-20px||||false|false&quot; custom_margin_tablet=&quot;&quot; custom_margin_phone=&quot;&quot; custom_margin_last_edited=&quot;on|desktop&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text module_id=&quot;komfort&quot; _builder_version=&quot;4.19.0&quot; _module_preset=&quot;default&quot; text_font_size=&quot;18px&quot; header_font=&quot;Open Sans||||||||&quot; header_font_size=&quot;35px&quot; header_2_font=&quot;Open Sans||||||||&quot; header_2_font_size=&quot;28px&quot; global_colors_info=&quot;{}&quot;]<h1 style=\"text-align: center;\"><span style=\"font-weight: 400;\">Niech zdarzy si\u0119 CUD!<\/span><\/h1>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xdj266r x126k92a\">\n<div dir=\"auto\">\n<p><span style=\"font-weight: 400;\">Dop\u00f3ki nas nie widzia\u0142a\u015b\/widzia\u0142e\u015b nie mieli\u015bmy szans\u2026 M\u00f3j Oliwier, m\u00f3j syn. 9 miesi\u0119cy jest z nami, a ju\u017c wi\u0119kszo\u015b\u0107 tego czasu jego \u017cycie stoi pod znakiem zapytania\u2026 Dlaczego? Jako tata prosz\u0119 Was! <strong>Jako tata B\u0141AGAM z ca\u0142ych si\u0142, kt\u00f3re mi zosta\u0142y!!! Pom\u00f3\u017c mojemu synkowi bo ja sam nie jestem w stanie.<\/strong> Potrzebujemy jeszcze niespe\u0142na 5 mln z\u0142, jeste\u015bmy za po\u0142ow\u0105, a nasza zbi\u00f3rka zwolni\u0142a. Chcia\u0142bym\u00a0 aby zdarzy\u0142 si\u0119 cud! Czy si\u0119 zdarzy? Czy m\u00f3j syn dostanie lek, kt\u00f3ry pomo\u017ce mu prze\u017cy\u0107? Nasza codzienno\u015b\u0107\u2026 odg\u0142os aparatur, ci\u0105g\u0142e pytania m\u0142odszego synka Alanka; Tato czy ja b\u0119d\u0119 m\u00f3g\u0142 pobawi\u0107 si\u0119 z Olisiem?I moje milczenie\u2026. Wiara, \u017ce tak si\u0119 stanie. Niech zdarzy si\u0119 cud! B\u0141AGAM O NIEGO CODZIENNIE\u2026Udost\u0119pnij ten post (to jest ogromnie wa\u017cne) i wp\u0142a\u0107 sum\u0119, na kt\u00f3r\u0105 mo\u017cesz sobie pozwoli\u0107, podpisuj\u0105c j\u0105:\u00a0<\/span><\/p>\n<\/div>\n<div dir=\"auto\"><\/div>\n<div dir=\"auto\">&#8220;NIECH ZDARZY SI\u0118 CUD&#8221; &#8211; <a href=\"https:\/\/www.siepomaga.pl\/oliwier-sma\" target=\"_blank\" rel=\"noopener\">kliknij i pom\u00f3\u017c<\/a><\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\"><\/div>\n<\/div>\n<div class=\"x11i5rnm xat24cr x1mh8g0r x1vvkbs xtlvy1s x126k92a\">\n<div dir=\"auto\">Niech zdarzy si\u0119 cud i \u2026..zauwa\u017cy nas wi\u0119cej os\u00f3b, kt\u00f3re pomog\u0105.\u00a0Niech ten post trafi do wszystkich twoich znajomych z ca\u0142ej Polski.\u00a0Niech m\u00f3j syn dostanie terapie przed uko\u0144czeniem pierwszego roku.<\/div>\n<div dir=\"auto\"><strong>PROSZ\u0118, B\u0141AGAM I WIERZ\u0118!!!<\/strong><\/div>\n<div dir=\"auto\">Dzi\u0119kuje Ci, \u017ce jeste\u015b <span class=\"x3nfvp2 x1j61x8r x1fcty0u xdj266r xhhsvwb xat24cr xgzva0m xxymvpz xlup9mm x1kky2od\"><img loading=\"lazy\" decoding=\"async\" height=\"16\" width=\"16\" alt=\"\u2764\" referrerpolicy=\"origin-when-cross-origin\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/ted\/2\/16\/2764.png\" \/><\/span><\/div>\n<div dir=\"auto\">Artur Tata Oliwiera z Wadowic&#8221;<\/div>\n<\/div>[\/et_pb_text][et_pb_image src=&quot;http:\/\/vaxhoib.cluster100.hosting.ovh.net\/wp-content\/uploads\/2022\/11\/received_1491288311392045.jpeg&quot; alt=&quot;Niech zdarzy si\u0119 CUD&quot; title_text=&quot;Niech zdarzy si\u0119 CUD&quot; url=&quot;https:\/\/www.siepomaga.pl\/oliwier-sma&quot; _builder_version=&quot;4.19.0&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row use_custom_gutter=&quot;on&quot; make_equal=&quot;on&quot; module_id=&quot;nieszkodzic&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; custom_margin=&quot;-20px||||false|false&quot; custom_margin_tablet=&quot;&quot; custom_margin_phone=&quot;&quot; custom_margin_last_edited=&quot;on|desktop&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.16&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text module_id=&quot;komfort&quot; _builder_version=&quot;4.19.0&quot; _module_preset=&quot;default&quot; text_font_size=&quot;18px&quot; header_font=&quot;Open Sans||||||||&quot; header_font_size=&quot;35px&quot; header_2_font=&quot;Open Sans||||||||&quot; header_2_font_size=&quot;28px&quot; global_colors_info=&quot;{}&quot;]<h2 style=\"text-align: center;\"><span style=\"font-weight: 400;\">B\u0142agamy pom\u00f3\u017ccie Nam uratowa\u0107 \u017cycie naszego synka!\u00a0<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Szanowni Pa\u0144stwo,<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Nazywamy si\u0119 Joanna i Artur Koman i za po\u015brednictwem tego listu pragniemy zwr\u00f3ci\u0107 si\u0119 z apelem do wszystkich ludzi dobrej woli \u2013 <strong>pom\u00f3\u017ccie nam uratowa\u0107 \u017cycie naszego dziecka!<\/strong> <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Kilka miesi\u0119cy temu, na \u015bwiat przyszed\u0142 <a href=\"https:\/\/www.facebook.com\/groups\/1728121917527468\">nasz wyczekiwany syn Oliwier<\/a>. Przepe\u0142nieni rado\u015bci\u0105 nawet nie przypuszczali\u015bmy, \u017ce ju\u017c wkr\u00f3tce nasze szcz\u0119\u015bcie runie jak domek z kart. Nied\u0142ugo po narodzinach, zaobserwowali\u015bmy u Oliwiera problemy z poruszaniem ko\u0144czynami. Nasz synek utraci\u0142 zdolno\u015b\u0107 podnoszenia n\u00f3\u017cek, a jego r\u0105czki wyra\u017anie os\u0142ab\u0142y. Rozpocz\u0119li\u015bmy rehabilitacj\u0119, jednak nie przynosi\u0142a ona efekt\u00f3w. Zacz\u0119li\u015bmy szuka\u0107 pomocy u lekarzy. Zbywani przez kolejnych specjalist\u00f3w, wreszcie trafili\u015bmy na konsultacj\u0119 neurologiczn\u0105, kt\u00f3r\u0105 zapami\u0119tamy do ko\u0144ca \u017cycia. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Nawet w najczarniejszych snach nie przypuszczali\u015bmy, \u017ce za chwil\u0119 nasz ma\u0142y synek stanie oko w oko ze \u015bmiertelnym wrogiem. Lekarz wysun\u0105\u0142 podejrzenie SMA1 \u2013 najcz\u0119stszego i najostrzejszego typu rdzeniowego zaniku mi\u0119\u015bni. Zostali\u015bmy skierowani do szpitala. Ostateczn\u0105 diagnoz\u0119 otrzymali\u015bmy w dniu, w kt\u00f3rym Oliwier sko\u0144czy\u0142 6 miesi\u0119cy. Niestety potwierdzi\u0142y si\u0119 wcze\u015bniejsze przypuszczenia. W tamtej chwili nasz \u015bwiat run\u0105\u0142. Diagnoza by\u0142a jak n\u00f3\u017c wbity prosto w serce. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u015awiadomo\u015b\u0107, \u017ce \u015bmiertelna choroba genetyczna odbiera \u017cycie naszemu dziecku, jest czym\u015b nie do zniesienia. Od tej chwili toczymy nier\u00f3wn\u0105 walk\u0119 i desperacki wy\u015bcig z czasem. Jedynym ratunkiem dla Oliwierka jest najdro\u017cszy lek na \u015bwiecie. <strong>\u017bycie naszego dziecka zosta\u0142o wycenione na 10 milion\u00f3w z\u0142otych.<\/strong> Niestety specjalistyczna terapia genowa zmieniaj\u0105ca przebieg choroby i \u0142agodz\u0105ca jej skutki nie jest refundowana. Ponadto, lek musi by\u0107 podany, zanim dziecko osi\u0105gnie wag\u0119 13,5 kg \u2013 Oliwier wa\u017cy ju\u017c 8kg.<\/span><\/p>\n<p>B\u0142agamy pom\u00f3\u017c nam uratowa\u0107 <a href=\"https:\/\/www.siepomaga.pl\/oliwier-sma\" target=\"_blank\" rel=\"noopener\">\u017cycie naszego syna<\/a>!<\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;grupa&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-28px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row module_id=&#8221;nadzieja&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-20px||-20px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Open Sans||||||||&#8221; text_font_size=&#8221;20px&#8221; global_colors_info=&#8221;{}&#8221;]<p><span style=\"color: #ff6600;\"><strong><em>B\u0119dzie mi mi\u0142o, je\u015bli udost\u0119pnisz ten artyku\u0142 dalej! Dzi\u0119kuje!<\/em><\/strong><\/span><\/p>\n<p><strong><em><\/em><\/strong><\/p>\n<p><strong><em><\/em><\/strong><\/p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Related Articles&#8221; _builder_version=&#8221;4.16&#8243; custom_margin=&#8221;-100px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; header_2_font=&#8221;Montserrat|700|||||||&#8221; header_2_font_size=&#8221;70px&#8221; header_2_line_height=&#8221;1.2em&#8221; max_width=&#8221;750px&#8221; header_2_font_size_tablet=&#8221;48px&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<h2>Related Articles<\/h2>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; text_font=&#8221;Poppins|700|||||||&#8221; text_text_color=&#8221;rgba(0,0,0,0.06)&#8221; text_font_size=&#8221;107px&#8221; text_line_height=&#8221;1.2em&#8221; custom_margin=&#8221;-120px|||-120px|false|false&#8221; custom_margin_tablet=&#8221;-90px|||-60px|false|false&#8221; custom_margin_phone=&#8221;-70px|||-40px|false|false&#8221; custom_margin_last_edited=&#8221;on|desktop&#8221; text_font_size_tablet=&#8221;80px&#8221; text_font_size_phone=&#8221;60px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<p><span style=\"color: rgba(0, 0, 0, 0.06);\">Related<\/span><\/p>[\/et_pb_text][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;current&#8221; show_thumbnail=&#8221;off&#8221; show_more=&#8221;on&#8221; show_excerpt=&#8221;off&#8221; show_pagination=&#8221;off&#8221; _builder_version=&#8221;4.16&#8243; header_level=&#8221;h4&#8243; header_font=&#8221;Open Sans|700|||||||&#8221; header_font_size=&#8221;22px&#8221; header_line_height=&#8221;1.4em&#8221; meta_font=&#8221;Open Sans||||||||&#8221; meta_font_size=&#8221;12px&#8221; meta_line_height=&#8221;1.8em&#8221; read_more_font=&#8221;|600||on|||||&#8221; read_more_text_color=&#8221;#fa6900&#8243; read_more_font_size=&#8221;12px&#8221; read_more_letter_spacing=&#8221;4px&#8221; read_more_line_height=&#8221;1.8em&#8221; text_orientation=&#8221;center&#8221; border_color_all=&#8221;#e6e6e6&#8243; global_colors_info=&#8221;{}&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section]\n","protected":false},"excerpt":{"rendered":"<p>Niech zdarzy si\u0119 Cud &#8211; \u017bycie naszego dziecka zosta\u0142o wycenione na 10 milion\u00f3w z\u0142otych! B\u0142agamy o pomoc!<\/p>\n","protected":false},"author":3,"featured_media":14998,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[2,3,4],"tags":[114,115,155,613,655,656,723,910,927,979],"class_list":["post-14989","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog-odrudej","category-mama-i-dziecko","category-relacje","tag-choroba","tag-chorobasma","tag-cud","tag-niech-zdarzy-sie-cud","tag-oliwier","tag-oliwier-sma","tag-pomoc","tag-siepomaga","tag-sma","tag-syn"],"_links":{"self":[{"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/posts\/14989","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/comments?post=14989"}],"version-history":[{"count":0,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/posts\/14989\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/"}],"wp:attachment":[{"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/media?parent=14989"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/categories?post=14989"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/vaxhoib.cluster100.hosting.ovh.net\/index.php\/wp-json\/wp\/v2\/tags?post=14989"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}